Create Change Through Lived Experience: The Whole Advocate™ Model
06/02/2022
Please note: This session of The Advocacy Exchange is 90 minutes, from 11:00am-12:30 pm ET.
Any movement toward positive change requires people sharing their lived experiences—to give voice, raise awareness, change minds, educate or motivate. It requires advocates. But how can advocates feel confident that their stories are being heard and truly making a difference? Join Tim Cage and John Capecci, cofounders of Living Proof Advocacy, as they describe their model of support for advocates sharing their personal stories. Participants receive a free eBook version of Living Proof: Telling Your Story to Make a Difference and may download the white paper Improving the Quality of Patient Engagement by Centering the Advocate. Tim and John will share examples of how advocacy organizations have applied the Whole Advocate model, and offer tips on using Living Proof to prepare personal stories that move listeners from apathy to empathy to action.
Once your personal story is perfected, join Kate Callan, EVP, Head of Social Media at Evoke KYNE, for tips and best practices to amplify your story on social media. Taking the leap to share your story on social media may feel intimidating but this session will arm you with some simple suggestions to get started or refresh your approach if you’re already active on social.
Session Resources
Improving the Quality of Patient Engagement by Centering the Advocate
Create Change Through Lived Experience: The Whole Advocate™ Model
Prepare for this session with these sections of Living Proof: Telling Your Story to Make a Difference:
- Read the preface
- Read the introduction
- Read through chapter 1
- Complete the “Six-Word Reason” exercise at the end of chapter 1
Also, please familiarize yourself with the PDF linked to in the “Session Resources” above. Then you’ll be all set to discuss how to make a difference telling your story with our session speakers and audience!
About the e-book:
The first guide to personal storytelling for advocacy, this easy-to-use handbook helps you
- Decide what to tell
- Tell your story effectively and authentically
- Link your passion to your goals
- Deliver powerful presentations
- Conduct great media interviews
Living Proof features examples, tools, exercises and worksheets to help prepare speakers at all levels. You can work through the book on your own or in conjunction with a Living Proof Advocacy™ workshop.
Whether you’re just starting out or looking to take your advocacy skills to the next level, Living Proof delivers the grounding, confidence and guidance you need to unleash the power of personal storytelling.
Moderator
Dave Bjork
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Dave Bjork
Lung Cancer Survivor, Patient Advocate and Vice President of Empowerment, Gryt Health
Dave Bjork is a patient advocate and research evangelist with more than 20 years of progressive experience in community-building, nonprofit fundraising, and patient engagement and empowerment leadership roles. He is currently Vice President of Empowerment for Gryt Health, working on a team to provide patient-centric solutions to Gryt Health’s pharmaceutical and healthcare clients’ most challenging problems in order to help them better address patient needs. Dave is also host of the Research Evangelist Podcast where he interviews people in life sciences doing meaningful work. In addition, he is an advisor to Medidata Solutions where he serves on the Patient Insights Board team to bring the patient voice to the clinical trial experience. Previously Dave spent 8 years leading nonprofit fundraising and advocacy teams, including 4 years as Vice President of Development for National Foundation for Cancer Research where he was responsible for all fundraising and advocacy efforts.
A lung cancer survivor, Bjork has made it his life mission to connect patients, biopharma companies, academic institutions, and other key influencers to forge strong partnerships to focus on research. He also advocates for and builds bridges between patient groups and the biopharma industry. He proudly serves on the Advisory Board of the Cancer Epigenetics Institute at Fox Chase Cancer Center, and the Board of The White Ribbon Project, a grassroots 501(c)3 nonprofit raising lung cancer awareness. Dave earned a BS in Economics and Finance from the Wharton School at the University of Pennsylvania.
Speakers
Tim Cage
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Tim Cage
Cofounder and Senior Coach, Living Proof Advocacy
Living Proof Advocacy™ was founded by Tim Cage and John Capecci, who met more than 20 years ago in a graduate school course about the power of stories told out loud. Since then, they’ve helped thousands of advocates and hundreds of organizations share their stories to increase awareness, educate others, create change or raise funds. Tim and John are also co-authors of Living Proof: Telling Your Story to Make a Difference.
For more than 20 years, Tim Cage has coached and consulted with celebrities, sports stars, business owners, thought leaders and everyday advocates with extraordinary passions. Tim brings a keen understanding of public relations, media, presentation skills and how high-profile spokespersons use their stories to make an impact.
Kate Callan
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Kate Callan
EVP, Head of Social Media, Evoke KYNE
Kate oversees social media and influencer engagement at Evoke KYNE, a communications agency that harnesses insight, experience and creativity to advance health and wellbeing around the world. With a passion for the opportunities social media brings, Kate strives to develop strategic social programs that tap into stakeholder insights and influencer relationships to deliver authentic and engaging content. During her 15 years of working in healthcare communications, Kate has been at the helm of award-wining social and influencer campaigns and has spoken and contributed to various industry events and publications on social media. She was named a MM+M 40 Under 40 Honoree in 2021 and for the past three years has served as a judge for the WEGO Health awards, honoring online patient advocates and leaders in digital and social communications.
John Capecci
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John Capecci
Cofounder and Senior Coach, Living Proof Advocacy
Living Proof Advocacy™ was founded by Tim Cage and John Capecci, who met more than 20 years ago in a graduate school course about the power of stories told out loud. Since then, they’ve helped thousands of advocates and hundreds of organizations share their stories to increase awareness, educate others, create change or raise funds. Tim and John are also co-authors of Living Proof: Telling Your Story to Make a Difference.
John Capecci is a coach, consultant and writer who has helped hundreds of nonprofits and corporations do award-winning work that touches hearts and turns heads. John excels at helping mission-driven organizations hone their messaging and create powerful advocates to support those messages with their stories.