Giving Voice to the Often Voiceless: Advocate-led Research Creating Change


COVID-19 has interrupted our global healthcare systems, creating issues with patient access, new medicines development and global advocacy initiatives, as more than half of the world's population was under some form of lockdown in 2020. It also illuminated racial and ethnic healthcare disparities that have run rampant for far too long. In the face of these profound challenges, many advocates and healthcare providers have a new understanding of the issues facing their communities. This session will feature global experts as they discuss the insights they’ve gained throughout the pandemic, and how they’ve given a voice to those who are often voiceless.

Session Resources

All.Can Patient Survey (2019)

World Bladder Cancer Patient Coalition Patient Experience Survey (launching 2021)

Global Cancer Coalitions Network: Cancer Care during COVID-19 (2020)

ESMO 2021: Cancer Care during COVID-19: Data from 157 Patient Organisations

WBCPC Start-up guide for bladder cancer patient groups

Advocate-led Research Creating Change


Dr. Roxana Mehran

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Dr. Yasmin Ibrahim
Public Health Manager, Hepatitis B Foundation

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Alex Filicevas
Executive Director, World Bladder Cancer Patient Coalition, President, All.Can International

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Michelle Weese
Executive Vice President, Corporate Affairs, Bristol Myers Squibb

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