Working Groups: Creating Meaningful Change, Together

In 2021, we established four unique working groups to address key areas of interest in the advocacy community – identified via direct advocate feedback – focused on:

  • Health Equity: Racial & Ethnic Health and Healthcare Disparities
  • Health Equity: Access to Care
  • Patient Voice/Patient-Focused Drug Development (PFDD)
  • The Future of Advocacy

Our Working Groups meet throughout the year to progress actions that will address needs and opportunities in these focus areas. We welcome you to learn more about each group below, check out content from previous meetings, and participate in one or more of these Working Groups to use your voice, lead and learn.



Working Group Descriptions

Sheila Thorne

President and CEO, Multicultural Healthcare Marketing Group, LLC

Health Equity:
Racial & Ethnic Health and
Healthcare Disparities

Many social and economic factors drive health outcomes. However, there are associated structural, institutional and systemic disparities that need to be corrected for everyone to have...
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Brad Love

Ph.D., Co-Founder and Chief Culture Officer, GRYT Health

Health Equity:
Access to Care

Advancements in medicine and technology are creating better outcomes than ever, which makes the disparities in accessing care even more devastating...
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Neil Bertelsen

HTAi Patient and Citizen Involvement Group

Patient Voice/Patient-Focused
Drug Development

Patient involvement is increasingly being recognized as important to successful research and development of medicines and care. Patient-focused drug development...
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Gary Nolan

Chief Executive Officer, Colab Health

The Future
of Advocacy

The role of patient advocacy organizations is changing. There are increased demands, new challenges, and also emerging opportunities for creating meaningful...
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